I am a Breast Cancer survivor of 5 years. I developed lymphedema a year and half after a partial mastectomy and the removal of lymph nodes. By the time I was diagnosed with lymphedema, I had already lost 40% usage of my right arm due to the swelling and pain. I went through aggressive lymphedema therapy to relieve the pain and swelling but will not regain the full use of my arm/hand. I now do lymphedema massages twice daily to reduce the pain and swelling but it does not eliminate it.

This has caused me to limit and adapt many areas of my everyday life. I cannot carry or hold onto anything over 1pound with my right hand. Opening doors, tying my shoes, using a hand held can-opener, and many other daily simple tasks have become very difficult.

I wear a compression sleeve 12 hours a day and the insurance company refuses to cover the cost even though the Women’s Health and Cancer Rights Act of 1998 states clearly this should be a covered expense. The sleeves only last 3-4 months since you have to change them daily. I need to have at least four at all times. This is an added out of pocket cost of $440.00 four times a year for a total of $1760.00 just to maintain the lymphedema because there is not cure.

The medical expenses to survive Breast Cancer has already depleted our savings and retirement accounts. This extra financial burden can be eliminated for many breast Cancer survivors by passing the Lymphedema Treatment Act.